Today was a busy day - Brextin got up at 5:30 a.m. and then we left the house by 7:00 to make our first HBO dive at 8:30. There is a lot of construction in the area and I wanted to make sure we would make it to the appointment on time -
We arrived early so he could get fitted for his special hood - they first measured around his neck and made the hood to only fit around his head - which made me a little nervous because he loves to place his fingers into his mouth - so I then asked if the hood could actually go around his waist so his hands could be inside the hood as well - and they said no problem - this has been wonderful - I am allowed to place a couple of his favorite toys right inside the hood - so he can play with them while inside - he really likes to chew on a blue chew tube - I thought it might help him swallow and to prevent his ears from popping.
The first dive was interesting - because the hood goes around his waist - he didn't want to lie down - since it would have been uncomfortable - so I rested him in my lap the whole time we were in there - I even stood him up for a little while - The time alone with him allowed me to rethink all of my camp songs, nursery rhythms, etc Eventually I had to read from a book I took in there - because I was running out of material - you can only imagine how long 1 hour can be while you are trapped inside a tank with a child who is unable to talk or respond to you -
When our first dive was done - we traveled to our next destination which was intensive therapy - Today was more of a get to know you day - which was good since our little guy decided to sleep for 2 hours during the scheduled sessions - I am going to see if the center is flexiable and would allow us to split up his therapy session instead of trying to do 4 hours straight - I just think 4 hours is too much for him in one given time period - he still needs to find time to eat - as well as sleep -
We have meet wonderful people at both locations - they really have been very helpful at making us feel welcomed - We even met a beautiful 3 year old girl from the Mirco list serve from yahoo groups - she began her dives this Monday.
Our day ended with a second dive - which went fine as well - then we drove home. I arrived home around 6:00 - so basically our days are very similar to our regular routine in regards to leaving and arriving home -
Only 38 more dive sessions - I better get going so I can get some sleep since our day will begin all over again at 5:30 -
I will do my best at keeping the blog up to date - currently no new changes - keep praying!!
Ohh ya - he played with shaving cream and did an art picture - he really liked this activity.