When my son was feed via g-tube we used the Kimberly - clark MIC-KEY bolus extensions sets with Cath tip - secure-lok straight connector and clamp - and we would be willing to pass these tubes onto other families that would be able to benefit from them
We were only allowed two a month from the state - in fears that bacteria would grow in the tube - we bought additional ones from ebay - and now that he is an angel - we would like to pass these onto another deserving family -
We have about 30 of them - most are 12 inches Please email me or leave a comment on this blog if you are interested - and indicated how we can communicate.
(depending on shipping costs - we might need to stay within the US)
I have posted this to two of my list serves that I belong to - but no takers - which amazes me - so if you know someone who could use these please pass this information along.
Randi and Andy,
ReplyDeleteYou are two special people with a very special angel. I learned of Brextin's site through Elijahland. My son Brecken was born by emergency c-section on August 27, 2007 after suffering a lack of oxygen in utero. Brecken was having seizures immediately after birth, he was atr lifted to Children's in Minnepolis where he under went brain cooling. Brecken was diagnosed with Cerebral Palsy at 3 days old.
He also had a poor suck and swallow and no gag reflex. We spent many weeks in the hospital and were finally able to come home once a feeding tube was placed. He now has a Mickey button. Like your family, we have therapy 4 days a week and have been through Hbot.
Breckens seizures came back a few months after birth and were controlled for 2 years on Keppra. When he was 2 1/2 we switched him to Trileptal and that worked until his first epileptic seizure occurred. It lasted for 3 hours and it seemed all the medicine in the world would not stop it. They finally got it under control and since then he has had 2 more full blown tonic clonic seizures while on both Keppra and Trileptal. His O2 drops down into the 50's and he will not recoup until he recives O2. We are praying we can get these under control as it breaks our hearts to watch him have to go through this and I fear every time that he may not come out of them.
Please know that your family is in our thoughts and prayers and as is your little angel!
If there are any therapy items that you still have and are looking to donate or sell, Please let me know as you have many items I have never seen or heard of before.
Mindy Dahlberg
Isanti, MN 55040
Most of my items have been donated - but I still have extra g-tube extentions - do you use the style that we used? Do you happen to have a blog yourself on your child- my thoughts and prayers go out to your family - as our children seem to be similiar in certain areas - it is not easy to raise these adorable children and a ton of love is being sent in your direction!
ReplyDeleteWe would love some of the extensions if they are still available! :)
ReplyDeletewaffle1313 @ gmail.com