Search Brextin's Blog (type in Medek, Oxygen therapy (HBO), Wingbo, neck ring,G-tube, etc)

Saturday, September 25, 2010

A Beautiful Miracle (A necklace made just for me by a past student)

A former student of mine, Tyne has recently started to create beautiful necklaces in her spare time and I have been totally impressed with her designs that I asked if she would be willing to create a sunflower necklace for me to honor our son, Brextin. - I am overwhelmed with the piece of art that she created. I absolutely love it and will cherish it forever!
As you go through life - you tend to meet a lot of different people. Some of those people leave memories that will last a life time - and I must say that Tyne has always been a wonderful lady- who is thoughtful and caring and she will remain in my heart forever.
As I mentioned above, Tyne makes these beautiful necklaces in her spare time - but in reality - I have no idea when she creates these art pieces because she is also a full-time English teacher and has created a blog as well to show off her talent - here is her blog address:

Heaven's Very Special Child

This was sent to me after Brextin's passing . . .

Heaven's Very Special Child

A meeting was held, quite far from earth
"It's time again for another birth,"
Said the angels to the Lord above,
"This special child will need much love"
His progress may seem very slow,
Accomplishments he may not show
And he'll require extra care

From all the folks he meets down there.
He may not run or laugh or play
His thoughts may seem quite far away
In many ways he won't adapt,
And he'll be known as handicapped.
So let's be careful where he's sent
We want his life to be content

Please, Lord, find the right parents who
will do this special job for you.
They will not realize right away
the leading role they're asked to play
But with this child sent from above
comes stronger faith and richer love.
And soon they'll know the privilege given
in caring for this gift from Heaven.
Their precious charge, so meek and
mild is heaven's very special child.

By John and Edna Massimilla (Chicken Soup for the Unsinkable Soul)

Brextin's temporary headstone

Wednesday, September 15, 2010

Almost done with Brextin's Memory Garden

The beautiful statue was a gift from our wonderful daycare provider - he even has wavy hair just like our Brextin. I can't wait until next year where we will be able to see the sunflowers bloom.

Friday, September 3, 2010

Frusterated with insurancce!

Just this week - I got two bills in regards to our son, Brextin - who has been an angel for at least 4 months. We had BCBS over one year ago - and just this week - I got a bill from them indicating that they over paid us - Mind you - this is "one year ago" and now they want $1500 in 15 days or we are being sent to the collection agency.

Plus we got a bill from the center in which we got our medical supplies from (Apria) - they now claim we owe them $71 for syringes - really - if they would have told me in advance that they were not covered under both of our insurance companies I would have sought out medical supplies from some place else (possibly ebay) (this is where I first got his feeding tubes)

They were sending me 4 syringes at a time - then one day the operator told me they could send me as many as 15 - I made certain to ask - now these will be covered correct - and she stated they would be - so I gave her the go ahead of sending them.

When you feed a child via a feeding tube - you need to have a ton of syringes since this is the ONLY way you are able to get food into their bellies - we were using olive oil on the syringe to make them last longer - but by getting more of them - caused life to be a little easier - but for $71.00 - I could have continued to use the olive oil and lived with it. Plus this bill is only for January - so I am sure more bills are on their way - URGH!!