We ventured into New York today - it was suppose to be raining all day - with a chance of severe storms - which was a concern to us - since we had Brextin along- but luckily we saw NO rain - we were able to make it to - Battery Park (Statue of Liberty), Times Square, and Central Park. We even were able to sit in a lawn chair on 7th Avenue and face Times Square - so we purchased shirts that read - I "lounge" New York!
Tomorrow morning is when he begins his Medek therapy - he has been a good trouper throughout our adventures.
We have schedule surgery to be on that Tuesday after I come back for a feeding tube - I sure hope we are making the right decision - it is so stressful to feed him liquids - and hopefully we can pump more nutrients into him.
We are also in the process of scheduling more oxygen treatments - I will spend my Christmas vacation in Madison - and Andy will complete the other 22 sessions after me. I just got done reading about Elijah (a friend of Brextin's) www.elijahland.com who has done 3 (40) sessions of oxygen treatments and have seen wonderful results - he has actually caught up to his peers that he no longer is receiving physical therapy - gosh how I pray for success for Brextin.
Pray for success for us tomorrow - I sure hope we will be able to find the therapy center and more importantly - hopefully he will stay awake!! He will have two sessions a day for 5 days.
OOH ya - good news!! I have not seen ANY seizures for TWO days - which is amazing!!!