We won a promotion through a local radio station. You had to submit in 95 words or less - why we deserved a "Get Away" I had a hard time limiting our story to 95 words. The "Get Away" includes two round trip tickets to Chicago - and a make over from a local beauty/tanning salon "The Tannery". I am so thankful for this trip - I am hoping it will rejuvenate our lives. The radio station will be contacting me soon - to tell me more about the winning package.
I had bumped into a wonderful gal the other day who mentioned that her special daughter sees a pediatric epileptic doctor at a children's hospital in MN (the doctor actually specializes in nothing but pediatric epilepsy) - and she very HIGHLY recommended a particular doctor - so I called today - to see if we could get an appointment for Brextin - and luckily we did (plus our insurance will cover the appointment and hopefully the procedures) - however I will need to miss another 2 days of work while he gets another EEG done. As I talked to them - they had indicated they usually keep the kids at least 2 - 5 days to get an accurate EEG reading - we have never had a EEG lasting longer than 48 hours.
I am hoping they suggest he receives a PET scan - which would allow us to locate his “seizure focus” to help conquer his epileptic seizures?
I emailed our Neuro doctor that we currently see - to see if he thought he would be a surgical candidate - however he responded with this . . . I do not think that Brextin is a surgical candidate because of his multifocal epileptiform discharges, but I will ask our senior pediatric epilepsy specialist.
We love our neurologist that we currently see at Rochester Mayo - but we have never had a second opinion - so we are now exploring that option.
He has been having about 2 to 3 seizures a day lately.