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Sunday, October 25, 2009

Respite care - might be on the way!

Today I met with a company called ResCare Home Care - the company provides personal care workers to help families with special needs kids or aging adults - it is paid by the state - We won't know if we are approved until around 2 months -

We get to interview possible personal care workers - the vary in ages - from college students to mature adults - I mentioned to today's nurse - I am interested in someone who will be comfortable feeding him via g-tube, one who will not panic if or when he has a seizure or throws up - and one who would be willing to interact with him - and not just sit and watch TV.

I also mentioned that before he or she begins to care for my son that they read over his blog to help better understand his condition - so there are no surprises once they begin.

They could even work a night shift if he ever becomes sick with a cold and won't sleep - I find it tough to sleep when I hear him talking, coughing or crying - and it is tough to function the next day at work when I am unable to get an uninterrupted amount of sleep.

I am hoping I will be able to spend more time with my oldest son - especially in the Winter months - I can take him sledding or to the movies, etc.

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