We have been struggling with him eating by mouth ever since he got his G-tube - but lately he has been doing AWESOME!!! The toughest meal is breakfast - for whatever reason he doesn't open his mouth as easily at breakfast as he does at lunch and dinner.
My mom is currently in the hospital recovering from a total knee replacement - while visiting her today - Brextin munched on a sugar cookie - he almost ate the whole cookie by mouth - he was even chewing - - I light up when I see him eating things orally -
Please keep my mom in your prayers as she recovers from her knee surgery and continue to pray for Brextin as we continue to see improvements.
I am hoping to post pictures of Brextin in his lion custom tomorrow -
I am in the process of getting a wingbo swing http://www.wingbousa.com/index.htm for our little guy - I luckily have found a used one via Craig's list - it does not come with the long ropes - but I could get the ropes from the company later on for $35.00. I am just waiting to find out how much shipping will cost. I think it will make a wonderful Christmas gift for him. I am just really glad that I was able to find one much cheaper than the asking price for a new one.
Hi! I found your site on Google and lo and behold, the boy in the wingbo from momsincommon is my son! Small world! My son also receives CME medek therapy and he's starting HBOT in a week. I am so glad to hear that Brextin is improving! My son's site is prayfornathan.orgReplyDelete