Today was going good- Andy did his first dive and then we went back to the hotel for some lunch and then went to his two hour therapy session - he had speech first and then had Occupation therapy - however he hasn't been the same today - it has been an off day -
During speech he wasn't that into chewing or swallowing or even getting his tongue out - during occupational therapy he appeared tired - after his therapy sessions we walked back to the hotel and I tried to feed him one quick time - because I know him all to well that he will fall asleep on the way to the oxygen therapy center and I won't be able to feed him until his two hours of therapy are done which is around 6 pm- but I was only able to get 1/2 of a jar of food in him when he fell asleep.
As we were driving to the oxygen center - Andy asked me if Brextin was locked up and having a seizure - as I looked at him in his car seat - he was in fact in the middle of having a seizure - I then jumped into the back seat and calmed him down and the seizure passed - he did not throw up which was a plus - but of course it caused Andy and myself into a fight.
I am uncertain if anybody can understand the toll it takes on a relationship to have a special child - myself - I have been on a high cloud proud of seeing him improve in certain areas - and now this has brought me back to reality - he may never live a normalcy of a life - we will always be living in fear of when his next seizure will occur.
Andy did admit that he to has seen some improvements lately - but believes it is mostly due to the therapy end and not the oxygen end - I myself think it is because they are being paired as of right now -
Who knows - Andy is currently in the chambers right now and I am praying that everything will be ok - and no more seizures will occur - I just wish he could enjoy life without it being interrupted with these terrible seizures and delays - why is it our precious boy? why why why - I just want to be able to enjoy him crawling, walking, grabbing or wanting me, or having a tantrum or even fighting with his brother -I guess as of right reality needs to set in and need to remind myself they are mostly dreams and may nerve occur.
Yeah! I'm glad Andy was able to experience it as well! Sorry to hear about the seizure! I sure hope he's feeling better today! I can't wait to see him! He looks like he has grown a ton since you left! I can tell in the pictures that his muscles are stronger!!!ReplyDelete