Brextin's Hope: We have been blessed with great news!!

Friday, November 27, 2009

We have been blessed with great news!!

I have nothing but good news to report in regards to Brextin's MRI - our Dr. indicated that today was a day of good news - I don't think I ever have heard him say that (I am so relieved to hear this) - he stated that there appeared to be nothing wrong with his brain appearance - in the past his MRI's have shown some extra fluid surrounding his brain - and currently the fluid looks to have improved which is a huge plus. Plus his white matter myelin appears to be getting thicker - this is needed in order to send messages to the learning part of the brain - which is another big plus.

All in all - he stated that today was a day of good news and that everything looked positive - however it appears as if Brextin is progressing on his own schedule - and not on the "normal" progressive schedule - but the good news is that he hasn't regressed and he does continue to work hard to move forward - thank you Lord for our prayers have been answered!!!

We could not have asked for better news! Praise the Lord - Amen!!!

1 comment:

Marcia RNNovember 28, 2009 at 10:32 AM
I am so happy to hear of your positive MRI report! Merry christmas..
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History of Brextin - May 2007- May 2010

Our son was born on Mother's Day in 2007 - we thought everything was fine - when he was born they did wisk him away because he was swallowing fluid - so they suctioned the fluid out and placed him on extra oxygen - just to be safe - they said I had nothing to worry about - he should be fine -

We noticed from day one he had a very pour suck - he also had a vomiting problem - it seemed that he threw up everytime he ate - then he ended up having a poop issue as well - every diaper was a messy diaper - so we were sent to the doctor - they placed him on a special formula - thinking he was protein intollerant -

The poop issue ended, but not the vomiting - at about 2 months of age - he got his immunization shot and 4 days later he stopped eating - we were rushed to the hospital - where he remained for 10 days - they did test after test - and found nothing - except that his head was smaller than the norm and sent us on our way -

Our local ped doctor checked over the reports and wanted a second opinion - so we were sent to Mayo - they claimed that he could have seizures - however none were noted yet - but the brain pattern was present - then about 1 month later - the seizures started to appear - so we had another EEG and that was when he was DX with Infantile Spasms -He was then placed on two types of seizure medicines - vigabitran or Sabril and topamax. Two years later - he is now off both of those drugs - but is currently taking generic Keppra.

We tried intensive therapy, Hyperbaric Oxygen therapy, and MEDEK therapy in June of 2009 - in hopes it would help him further his development. By doing these therapies over the summer - has allowed him to be able to get into 4 point and rock back and forth.

We just completed a second round of oxygen treatments - and currently he is learning how to suck - which he has never been able to do - so this is a huge milestone. He still is unable to crawl, communicate or stand independently (but will stand when placed up against a wall). We plan on attempting AIT training over the Summer. (he died before this was attempted)

Our son had a rocky start for his first three years of his short life, but he made a ton of strides, we were hoping he would have beat the odds of this terriable disorder, however we sadly lost our son one week before his 3rd birthday - we were in the process of receiving a second opinion on his condition at a hospital in the cities - and we have no idea what happened but he was called to the Lord above to become his angel right while we were in the hospital.

He began to vomit during each seizure which caused aspiration which spread to phenomena which took his life in just a couple of quick hours. I still cannot believe it – he was bouncing in his bouncer and sucking on his fingers just 24 hours before his death – however the heavens now have a very special angel and we have a very very special guardian angel who will watch over our family each and every day. He will be forever missed!

Brextin's Hope

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Friday, November 27, 2009

We have been blessed with great news!!

1 comment:

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