Infantile Spasms - infant epilepsy - Microcephaly (Brextin became our guardian angel in May 2010)
WOW!!I am so glad to hear that the surgery went well. I find the videos fascinating and it is incredible to see the difference from day one to day five. The length of time he is standing and the number of steps he is taking is noticably improved. Also, he is crying a lot less in standing, even on days that he was crying, on the later days as compared to the previous days. The essay you posted is quite moving and very true. I will have to post is here in the office.I truly admire your coming to see me and working with me, especially from such a far distance. All that you have put into Brextin is really showing. The fact that you are sharing this with the world is also quite admirable. You are truly a resource to many parents and families. I have told many families I work with about your site.I wish you the best of luck the coming school year.G-d bless you, and please give a snuggle to Brextin for me. I miss him.