We have passed along all big items to about 8 to 9 local families in hopes that Brextin will live on through their children. These are some of the items that we used and found to be invaluable:
http://www.waterwaybabies.com/ (this is the wonderful neck ring we used for swimming, water therapy, and bathing)
http://www.ottobock.com/cps/rde/xchg/ob_com_en/hs.xsl/5164.html (this was his wheelchair - Otto Back Kimba stroller/wheelchair) The base came off so it could have been placed on a spider base - Brextin could sit on the floor so we never took the seat off of the base.
https://ssl202.chi.us.securedata.net/~arktherapeutic/Merchant2/merchant.mvc?Screen=CTGY&Store_Code=ATSI&Category_Code=Z-Vibes-Tips-Kits (A great site for oral motor tools and special cups) (We used the z-vibe and many attachments - we had a ton more tools than any therapist had that we visited)
Here is the link to the special cups that we used https://ssl202.chi.us.securedata.net/~arktherapeutic/Merchant2/merchant.mvc?Screen=CTGY&Store_Code=ATSI&Category_Code=CIPKUP and this is the link for our honey bear that we used to squeeze liquid into his mouth - http://www.talkingchild.com/shop_HoneyBearCupwithStraw.aspx
http://www.flaghouse.com/AAI-FOLDING-MAT-5-X-10-BLACK-item-18139 Exercise mat. We did his at home exercises on a mat like this.
http://www.amazon.com/Folding-WEDGE-Incline-30x72x12-Spotting/dp/B0014P60I6 Folding wedge - this was used to work on rolling and for sitting on an angle.
http://www.wingbousa.com/ (site for the wingbo - a great therapy swing) We bought ours off of Craigslist - best investment.
http://www.adaptivemall.com/sosionsi2.html (soft sitter chair - ours needed the replacement straps since we never used them and misplaced them)
http://www.merrymuscles.com/ (This is what he bounced in - it also comes in one for children with special needs - http://merrymuscles.com/product_info.php?products_id=30&osCsid=de73430b8434a869f715323e0f930f42
Therapy centers: http://www.naturesedgetherapycenter.org/(Rice Lake/Chetek)http://www.specialchildrencenter.com/ (Hudson) http://www.communicationinnovations.com/ (Madison)
Oxygen center - http://www.wisconsinhyperbarics.com/ (Madison)
MEDEK therapy - http://brextinshope.blogspot.com/2009/08/azriel-novogroder-is-our-medek.html
Special needs bumbo chair (we never used this): http://www.childrite.com/story.html or http://www.childrite.com/childriteseat-info.html
Special needs chair for grocery carts (we never used this) - http://cgi.ebay.com/Infant-Support-Chair-special-needs-babies-/130340375679?cmd=ViewItem&pt=Feeding&hash=item1e58e44c7f
They are working on one for bigger children as well
http://www.therapro.com/Therapros-2010-Product-Catalog-P17528C17524.aspx? (A good catalog for toys and other items)