Our son was born on Mother's day almost three years ago - so he would have been turning three on the 13th of this month - however he will be celebrating his special day with the angels above.
Here is a video of him that was taken on the first day of his EEG at the Epilepsy Group in St. Paul (this past Wednesday). He looks fantastic- I never knew it would be the last day we would see him happy as can be.
I never thought I would be typing this on his blog - our son has been a true fighter through everything - however his life will continue as he walks in heaven's arms.
He was born on Mother's Day almost three years ago - and his special journey began when he was only two months old - he has struggled with seizures and vomiting almost since day one.
It all started when we were scheduled for a second opinion EEG and something occurred that we were not expecting - his seizures began to increase - and by Thursday he was having about 12 a day - as our son had seizures he would often vomit - and because his tiny system was backed up (not able to have a bowel movement) - his stomach wasn't emptying as it should - and so when he had seizures - the food kept coming up and it eventually entered into his lungs - which caused him to have pneumonia - they pumped his chest for over one hour - and eventually gave up.
I am at a total lost - I never thought I would be laying my youngest son to rest -
As you look at the videos posted above - he looked fantastic- I never would have thought - that he would only be around for one more day.
I tried therapy after therapy with our son - and I now know that he is finally walking, running, and talking up a storm up in heaven with his Great Grandpa and Uncle.
We were blessed to have known such a wonderful boy - he had a contagious smile and a heart of gold.
Peace be with anyone else who is traveling along a special child's journey. I am so at peace knowing our son is no longer having seizures, vomiting, or having any type of pain.
Heaven got a very special angel! Your family is in your my thoughts and prayers.
I am so sorry! We will be praying for you and your family. Brextin was a special little boy!ReplyDelete
Oh Randi (and family),ReplyDelete
I wish there was something profound I could say that would help take away the pain. I'm in shock this morning. I'm so sorry! Know that you will be in my thoughts and prayers. And your amazing little boy, Brextin...I will NEVER forget him! He was amazing!
I'm SOO sorry Stan!!! You and your family are in my prayers!!!ReplyDelete
I called and left a message after reading your email. Our hearts are with you and your family. I know how hard you worked to help Brextin and I know how hard he worked. I am stunned and speechless. You are both amazing people. And, my heart goes out to you.
Eliza and I were so glad to meet you and Brextin last summer. I enjoyed his glorious smile and singing "Row Row Row Your Boat" with him. We have learned a lot from Brextin's journey.
Please write or call if you want to talk. I know how hard it is to find folks who can relate.
We are thinking of you.
Randi, Andy and Bray,ReplyDelete
I am so very sorry for your loss, the smiling boy with the infectious giggles. I am truly stunned, and at a loss for words. You will all be in my thoughts and prayers. It is comforting to know that he is pain-free, running, jumping, laughing and talking with all the other angels!
I have only been following your blog for a short time, but my heart is breaking for you today. Your posts have been an encouragement to me as a parent to two special needs children. Please know you are in our thoughts and prayers.ReplyDelete
I am in shock. I've been following Brextin through the microcephaly forum for a while now. My daughter Reagan also has microcephaly and infantile spasms and I always felt I could relate to you and all of the different therapies you tried to help little Brextin. I just can't believe he's gone. Prayers for you and your family. Lots of prayers.ReplyDelete
I am so sorry for your loss. You and your family are in my prayers. Brextin was a little angel and fought so hard. He was so lucky to have you as his mother. I am thinking of you, and if you need anything please let me know.
Love, Amanda Newman
Mrs Stanley and family,ReplyDelete
So sorry to hear of the loss of little Brextin. I notified Josh about your loss and he sends his greatest sympanthy to you. You are your family are in our thoughts and prayers.
Jeremy and Joshua Lieffring
Mrs Stanley and family,ReplyDelete
I'm so sorry. I wish I could say or do something to help. But heaven is one soul richer. And his memory will stay in our hearts. He was lucky to have you as his mother. Your family is in my thoughts and prayers.
Our hearts are breaking.... Brextin brought so much joy and love to this world. We feel so blessed have crossed paths with your family. We are sending all of our love and support your way.ReplyDelete
The ladies from Communication Innovations
Our family's hearts are with your family, today. I know that there are not words. What a special angel. We will be praying for your family.ReplyDelete
I am so sorry for your loss and he is now a angel. He is lucky to have such wonderful family as you have been for him. You are in our thoughts and prayers.ReplyDelete
Olina Nelson and kids
We are so sorry for your loss. Now heaven has a beautiful little angel. I've seen Brextin a few times at the preschool when Braeden would get dropped off or picked up. (Our son Chad goes to preschool with Braeden). Brextin always melted my heart everytime I saw him! We will keep you all in our thoughts and prayers. Larry, Mary, Liam, Chad and Caleb HamannReplyDelete
Randi, This website is such a beautiful tribute to your son. You have obviously been an inspiration to so many people who have been going through similar situations. I am so very sorry for your loss. I hope that you and your family can feel all of the prayers being lifted up for you- may God continue to bless your family with wonderful memories of your beloved son and may you find peace in knowing that he has found his new home in Heaven. Tena (Nicolai) HerbekReplyDelete
Randi, Andy and Brayden,ReplyDelete
We are so, so sorry to hear about your beautiful little boy. Please know that we are thinking about you all and that you are all in our prayers. He is pain free and is watching and caring for you all from above.
Love, Mike and Amy Gust
Wow. I am so sorry for your loss. Truly am.ReplyDelete
He was such a beautiful little boy. My heart breaks for you and your family. I am so sorry. You and yours will be in my prayers.ReplyDelete
I have been following Brextin's journey for a long time now, and my daughter is on a similar journey. You have always been an inspiration to us to keep fighting for her. I admire how much you fought for Brextin and I know he must have known what an amazing mom he has. Through tears I am typing this-sending love and hugs to you. I can't imagine-I will miss Brextin, I am so, so sorry he has gone, but I will remember him and will remember to keep up the good fight. Thank you for sharing his life with us.
I am so sorry for your loss... I will keep you and your family in my thoughts and prayers. Brextin will be dearly missed, and you can tell that he was such a special boy just by the pictures and videos you have posted.ReplyDelete
Randi & family- I am so very sorry for your loss. You've been such an amazing advocate over the years. Brexton will be just as awesome of an angel.ReplyDelete
To the Stanley family.ReplyDelete
I have periodically followed your blog. So I was dismayed to hear about Brextin. I feel such sadness for your family. And yes, grown men can cry. Not often, but I have a heavy heart for your loss.
Know many people are thinking of you in this time of sadness.
God says He won't give us bigger trials than we can handle, so you can be assured He is there for you.
I am Lisa's dad from Elijahland.
Thoughts and prayers from the Olsen Family - Mikayla, Abbey, Jill and Lance
So sorry for your loss.ReplyDelete
Hugs from all of us here in the Bronx, NY
I am in shock...I've been following and admiring your blog for awhile. We also have a son that seizures and developmental delays. My heart aches for you right now. You will be in our thoughts and prayersReplyDelete
I found out about Brextin from the blog of another family dealing with similar health issues. I just wanted to tell you how sorry I am for your loss of such a special boy.ReplyDelete
We're so sorry to hear about Brextin. It's been a very sad day here and our thoughts and prayers are with you today and everyother day. Brextin was an amazing child that overcame many odds and he was so extremely lucky to have you as his mother worrior and his advocate. I know that Brextin is now in heaven and in God's hands and finally out of pain, he will be dearly missed. Please let us know if there's anything we can do for your family during your time of need.
Dave, Erin, Shannon and Dr. Van Dyke (and everyone else that was blessed by Brextin's presence at WIHC)
Randi, I am so sorry to hear about your loss. I have also followed your blog as my youngest child, Katelyn, also had IS which has now moved onto other seizure types and think you are an amazing woman and a huge advocate. You and your family will be in my thoughts and prayers.ReplyDelete
Your always in my prayers Mrs.Stanley. You know that I'm always here if you ever need a hand. Your an amazing mother, and Brextin knew that. Love you!ReplyDelete
Randi, Andy and Brayden,ReplyDelete
There were many tears at school today. Staff and students alike are very saddened by the passing of Brextin. I picked up the phone many times today to call you, Randi, but am respecting your wishes for privacy at this time.
I feel blessed to have known Brextin and feel he was a positive force in many lives. I think back to the fundraiser for him and how he brought so many people together for a good cause. He brought smiles and joy to many!
Beautiful baby boy
Remembering you with tenderness
Endured by so many
X-tra special little one
Travel safely to your home
In our hearts and
God bless you.
Randi -- words cannot express how deeply saddened I was to hear about Brextin. My heart breaks for you and your family. Brex was so incredibly lucky to have you as his Mom. RIP Little Guy...ReplyDelete
Love & Prayers -- Kari, Jeremy & Morgan Guth
Randy, Andy and Brayden,ReplyDelete
You are in so many people's thoughts and prayers. I can't begin to imagine the pain you must be feeling...I wish there was something I could do to help take it away.
This morning you told me that Brextin is in a better place; and you are so right, as he is walking and talking in the comfort of our Lord. Doing all the things you worked so hard on to help him achieve here on earth.
You have been a family that sacrificed so much to help this little guy have a better life. You NEVER gave up--I have such admiration for you!
I am sending you love, prayers, and hugs, God bless all of you at this sad time.
Gary, & Peggy
he will always be.
<3 less than three.
Stanley Family, I follow your blog because I also have a special needs child. I am truly sorry for your loss.ReplyDelete
To the Stanley family,ReplyDelete
I just learned about your loss through Lisa Wagner as I was reading her blog Elijahland.
I can't even imagine the hurt you are going through at this time. Know that you will be in my prayers to God that He will be there to comfort you in this time of mourning.
I'm so sorry for your loss. I'll be keeping all of you in my thoughts.ReplyDelete
We are friends of Lisa and Andy Wagner and learned of your loss this morning on Elijahland. I can't begin to imagine the struggles you have faced these last three years and your heart break now. I do know that God places these little angels on earth for a reason and your precious Brextin is no exception. You and your family are in our thoughts and prayers.ReplyDelete
Ric and Nancy Jacobs
hey Stan. I was not given the honor to meet little Brextin, but he looks like a sweet and lovable boy.And i always loved getting distracted when you show us pics in class of him and his big bro. I could not help but smile at his pictures. God bless you and the rest of the Stanley family.ReplyDelete
I can't imagine what all of this must be like for you. I will pray for your family!
Our thoughts are with you and your family - Brextin had such an unforgettable smile!ReplyDelete
With sympathy - Jess Boland and Nate Ritsch
I was so sad to hear of Brextin's passing. My sympathy to all of you. We can just never take our children for granted especially our "special" ones. That 10:00 am spot on Thursday will feel pretty empty. I so looked forward to Brextin and loved it when he was having a good day.This has been quite the journey for all of you. You all ran a "good race" and now it is time for Brextin to rest and for you to take a break. May God Bless You and Keep You. DeDeReplyDelete
I have been following Brextin's blog for a long time. I admire what you did for him. I will keep you and your family in my thoughts and prayersReplyDelete
I have read your blog for just a short time through the micro group. You are an amazing mother and an inspiration to all of us who have children with special needs. My heart breaks for your loss, but I believe that God gave Brextin to you because you took such good care of him. Your blog has helped me as my daughter is now having seizures. She has changed our entire family for the better as I'm sure Brextin does for you. Praying for you and your family, for you to have the peace that surpasses all understanding.ReplyDelete
I am saddened to read this update, as I have been following your blog for a short while now. I pray for peace for your family as you go through this next leg of life's journey.ReplyDelete
Randi, I am so sorry. I was totally in shock. God be with you and your family....ReplyDelete
I am so sorry. There really are not words for this. As a fellow mother of a child with special needs...well wait, as a fellow mother, my heart breaks for you. Truly breaks.ReplyDelete
your story has been an inspiration to many families, including my daughter's in her fight for my granddaughter, Kenadi. they recently moved and did not have internet, so when i shared that your son had passed away, she began to cry. she has taken your advice and wisdom to heart and will miss hearing your stories of attempts and successes. may all the angels open wide the gates of Heaven and welcome Brextin home. I hope you are surrounded by family and friends to comfort you and peace in the days ahead. Grandma JeanReplyDelete