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Saturday, February 7, 2009

Benefit and two wonderful gals (Gay and Jane!)

I am excited as I am typing this - our little guy is jumping up and down in his Jumparoo - sometimes he can really jump - we also own the Merry Muscles - this one is similar but hangs from the ceiling - he loves that! However we need to watch him closely - I am uncertain if it is because he gets overly excited - but the other day - he was in it for about 5 minutes and jumping up and down and having a fun time and then he had an episode (might have been a seizure - and he attempted to throw up - and then just like that - with a snap of a finger - he fell asleep) I just don't understand it - at times he seems as if he is going to be ok - then at times we just do not know what to expect for his future.

I am so fortunate to be surrounded by great people- currently two people (Gay and Jane) are organizing a wonderful benefit for Brextin - the date is set for April 18th at the Elk Mound High School. They plan on having a spaghetti dinner, silent auction, and kid games to help raise money for Brextin -

The money raised will help offset our costs that we have endured with our loving son - we will be attempting Hyperbaric Oxygen Therapy (HBO) over the summer and each dive costs $150 and in order for the therapy to work - each child must do at least 40 dives - so that will cost our family over $4,000 - luckily I will be able to stay with a cousin who lives just 35 miles away from the center - which will help us financially -

In-between the HBO sessions - Brextin will be taking part in an intensive therapy session - which will last for 4 hours a day - 5 days a week - for 4 weeks - these sessions will take place in-between his HBO dives. This therapy cost over $9,000

Statistics show that more children see success if these two therapies are combined - so our little guy will be working very hard during this summer - It will be very hard to be away from our oldest son who is four - I am hoping I will be either able to drive home on the weekends or my husband will be able to drive him down to see us in Madison. These next four months are going to be very slow for me - since I am very anxious to try HBO therapy and the therasuit with him. They have said - children who do both of these therapies see better results if they are done at a younger age -

I have been praying more and more each day hoping that our child will be able to learn and be physically active.

Currently Brextin can do the following things:
Sit (we need to place him in this position)
Grab a toy if it is front of him
Open his mouth to take food orally
Stand if you are holding onto his fingers or waist
Roll from belly to back
He can rock back and forth while on hands and knees for about 3 minutes (you need to place him in this position)
Transfer a toy to both hands
Pull off socks from feet
He can say a few sounds - babble

Currently Brextin can not do the following:
Stand alone
Pull to stand
Suck - we feed him liquids through a syringe
Roll from back to belly
Recognize his parents or sibling
Smile for purpose (he will smile if you kiss his neck)
Giggle on purpose (he does giggle if you looks at certain lights - but that is also known to be a type of seizure)
Catch himself if he leans while sitting
Feed himself
Track 100% with his eyes
Hug his mom or dad

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