I am concerned that the spasms have returned - we have never seen spasms with our son - the brain pattern just has been observed while on a EEG - however this time I believe we are physically seeing the spasms. I can be holding him and he will be grabbing at my hair and all of a sudden he will let go and both arms will go straight up in the air and then come back down - it is bizarre behavior. Our daycare provide has said she has seen many of these - and I experienced my first one the other day. I have a call into our neuro at Mayo - and so I am now waiting to hear a response back. (waiting for a returned phone call can be the hardest thing!)
I am fearing he is loosing some skills - he has always bear weight and actually lifted his foot to walk while holding onto our fingers but lately he has been a little stinker and not wanting to bear weight or lift his feet - I just thought he was being defiant - I sure hope he isn't beginning to lose the skill due to the spams! Please pray!!
We did finally get the name brand Keppra as well - it wasn't the doctor that was slowing the process down it was the pharmacy - they never called to tell us it was ready to be picked up TWO days ago!
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