Brextin's Hope

A former student of mine, Tyne has recently started to create beautiful necklaces in her spare time and I have been totally impressed with h...

This was sent to me after Brextin's passing . . . Heaven's Very Special Child A meeting was held, quite far from earth "It'...

The beautiful statue was a gift from our wonderful daycare provider - he even has wavy hair just like our Brextin . I can't wait until ...

Just this week - I got two bills in regards to our son, Brextin - who has been an angel for at least 4 months. We had BCBS over one year a...

I have always said that sunflowers remind me of Brextin - since they come in so many different sizes and colors. Right now I envision Brexti...

We placed Brextin's memory stone into Irvine Park this past Friday and I absoultely love it!!

We just got notified that Brextin's 8 X 16 stone has been delivered to Irvine Park - So this Friday we will be meeting as a family to wa...

The thrift sale was a success - a very trying day for me - especially when I saw his walker and his rocking horse go- yet the money will be ...

This week will be another sad yet promising week. We will be selling most of Brextin's items in a two day thrift sale. All proceeds wil...

Here is a thank you card to all of those who have provided us comfort during this difficult time!

All of Brextin's remaining G-tubes have been sent out to well deserving families - may the families find them to be of good use!

I am extremely sad - missing our little guy! At times I still struggle with the " whys " just like I did when we were told he wou...

We just attended a wonderful benefit for a local 4 year old boy who suffers from Sotos Syndrome. http://www.sotossyndrome.org/what.php We ...

These were some of the books that Brextin received from the state since he was legally blind - they were truly amazing - I just wanted to p...

When my son was feed via g-tube we used the Kimberly - clark MIC-KEY bolus extensions sets with Cath tip - secure- lok straight connector...

Here is the last article on our son that was written by Christena T. O'Brien - printed by our local newspaper, www.leadertelegram.com ...

I plan on beginning to search for a site that will print our son's blog into a book - I am uncertain what it will look like since the vi...

I have three wishes . . . I wish everyone did the following while sending their condolences 1) write their names legibly 2) write first and ...

We have passed along all big items to about 8 to 9 local families in hopes that Brextin will live on through their children. These are som...

We are paying it forward with all of Brextin's items - if anyone would like to send me a message and we could arrange a time for you to...

I just got this from a past student of mine - I truly love it! A Mother's Day Wish From Heaven Dear Mr. Hallmark, I am writing to you fr...

Today we gave gifts for Brextin's birthday - First we visited the school in which he was scheduled to attend and donated his adaptive b...

Today we will be picking our healthy boy up at the funeral home and taking him home in an adorable urn where he will be spending his 3rd bir...

Our son's service yesterday was beautiful, a wonderful gal who has touched our lives forever gave a heart warming eulogy, my husband and...

Last night was our precious son's visitation and I must say I was so honored by all of the wonderful people that came out to provide pra...

I thank each one of you that have sent their prayers and thoughts to our family - they say that God often selects certain parents for his s...

I got up this morning with a deep pain in my stomach - I knew I had to go and take the very long walk to the mailbox to see my precious son...

I read Brextin the same book EVERY day of his life - I never missed a day - the book was titled, I love you more - http://www.amazon.com/Lo...

Beautiful Beautiful boy - thinking of having this song sung at his funeral. http://www.youtube.com/watch?v=Uldu_1-JCJE&feature=related...

Visitation will take place on Monday at Fuller Speckien Hulke on Rudolph Road from 5 until 7:00. Funeral will take place on Tuesday at Our...

Our son was born on Mother's day almost three years ago - so he would have been turning three on the 13 th of this month - however ...

Brextin is currently at St. Paul - having another EEG done - he had two seizures yesterday and at least 6 more today - one that lasted over...

Brextin is having about 2 seizures a day - we will be heading to a hospital in the cities for a second opinion this week - he will be under ...

Brextin seems to like real high frequencies so I am a little concerned that his hearing might not be the greatest - so we went to the hospi...

We had a wonderful turn out for our thrift sale and have raised a nice amount to help pay for some therapy. There was even a nice lady that ...

I am concerned that the spasms have returned - we have never seen spasms with our son - the brain pattern just has been observed while on a ...

We had his transition meeting yesterday and I think it went pretty well - nothing is finalized yet - but I think we will try to send him 3 ...

It would be two weeks this Saturday that Brextin has had a seizure - however today he has had many - I have asked our neuro at Rochester M...

As I am beginning to mark items for the sale - I can not help but hold back the tears as I am marking toys that his once older brother use t...

We have always questioned Brextin's circulation - and our local doctor claims that it is normal among children who are non-mobile - I j...

We are going to try the name brand version of Keppra to see if it will make a difference other than the generic version - since he still co...

Brextin has been having about two to three seizures a day (plus throwing up after some of them) - we have increased his generic Keppra to ...

One of my high school students came to school with a shirt that read . . . stop the r-word and I loved it and commended her for wearing it i...

A topic that has been discussed on one of the groups that I belong to via Yahoo - has been on alternative therapies. I still strive each and...

I can not believe our son's blog has had over 10,000 hits - I love it!!! I sure hope people are able to learn about our son's condit...

We have been noticing a different type of seizure lately - his face begins to get red botches (warning sign to us) then his body begins to t...

We won a promotion through a local radio station. You had to submit in 95 words or less - why we deserved a "Get Away" I had a har...

Once we increased his seizure meds - last week I thought we had conquered them - however - our wonderful daycare provider thought he had a ...

My birth to three coordinator - asked me to check with another therapy center for additional PT - therapy over the summer - since he will on...

Please support our son and the many others who are struggling with this disorder - wear purple to show awareness!!

What a difference an increase of meds can do - Brextin only had two seizures yesterday and NONE today - hallelujah!!!! He was all smiles a...

Grandma was going to take big brother to Hardee's to play in their ball pit - so I created one for little Brextin - he enjoyed watchin...

Hopefully this won't happen on a real horse :-)! Grandpa and Brextin - ahh texture!! Moments with daddy!

He had one seizure for daddy yesterday morning, four for our daycare provider, four for me after I picked him up from daycare and then four...

We have now increased his generic Keppra to 4.0 ml two times a day. He had three seizures yesterday - one with convulsions. While a ton of ...

I had a late day at work - for a late in-service and so I called our daycare provider on my way home to see how things went today - and she ...

This is a picture of a chair we have - that will be wonderful for Brextin when he gets bigger - it is called a "poof chair" it is ...

Here are some videos (even though they show up black - they will play if you press the arrow) - one will be a current video showing him havi...

I had a terrible night last night - Andy has been away for the weekend for a racquetball tournament - so I have had the boys to myself - and...

Brextin has been labeled legally blind - and I ran across these books from another one of the blogs that I follow - maybe he would be able ...

I had some time to explore facebook today - so I just set up an account - I still have no idea what I am doing - but I am exploring and dow...

I have been up and down with emotions - at certain times I am fine raising a child with extreme needs and then other days - I just break dow...