Brextin's Hope

Infantile Spasms - infant epilepsy - Microcephaly (Brextin became our guardian angel in May 2010)

Sunday, November 20, 2011

A website called - "My Child Has Wings" made this for me!

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3 comments:
Friday, November 11, 2011

We hit the paper again!

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Students Supporting Students Elk Mound High School students and members of the group Students Supporting Students will be collecting donatio...
2 comments:
Friday, August 26, 2011

Faith Lodge!

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We were so LUCKY to have the opportunity to stay at Faith Lodge in Danbury Wisconsin. http://www.faithslodge.org/ It is sponsored by the...
Thursday, July 14, 2011

Please vote for our son's memory garden!

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I have just entered Brextin's Memory Garden into a local contest - if we win - I could win prizes to help to enlarge his garden in the b...
2 comments:
Sunday, May 1, 2011

We are sadly approaching our one year anniversary . . .

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This coming Friday will be our one year anniversary of our son's passing - we are planning a couple of events to honor his life. t-shirt...
1 comment:
Sunday, January 30, 2011

Montage of Brextin's life

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You can create a 30 second Montage for "FREE" I had a very hard time limiting the video to just 30 seconds. Enjoy! Make an on-line...
1 comment:
Wednesday, January 26, 2011

Here is a wonderful video - honoring our son and many others who suffer from epilepsy!

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Make an on-line slide show at www.OneTrueMedia.com This video was created by Karen Siciliano - she has a beautiful daughter who has IS - Ch...
Saturday, January 15, 2011

In memory of Brextin (car decals)

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I found a lady on ebay - her auction was actually for a soldier in the service or someone with breast cancer but I just sent a message to ...
1 comment:
Monday, December 27, 2010

This is my favorite video!

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Listen to Brextin's giggle - he would only giggle like this when tossed in the air or swung side to side - that is why the video is blur...
1 comment:
Monday, December 20, 2010

My first Christmas in heaven

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This poem was written by a 13 year old boy who died of a brain tumor that he had battled for four years. He died on December 14, 1997. He ga...
1 comment:

A very special gift!

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The Very Special Gift By S. Guevara Once upon a time, three angels were busily working in the miracle factory. They were responsible for wra...
Sunday, December 12, 2010

National event: Light a candle for all children taken way to early!

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At 7:00 p.m. on December 12, 2010 please light a candle in memory of our son along with the many other children who have been taken way to e...
Saturday, December 11, 2010

Been thinking and struggling. . .

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Earlier today I received some news that we have now lost another child who was a member of our Infantile Spasms community (he was only 4 yea...
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Friday, October 29, 2010

Brextin's blog has been published!

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I just purchased this blog to be printed in a hard-covered book format. www.blog2print.com It has over 209 colored pages - and I will cheri...
1 comment:
Monday, October 11, 2010

So True!

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"I thought I would have had to teach my son about the world. It turned out I had to teach the world about my son. They saw a boy who co...
Tuesday, October 5, 2010

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Brextin might have consumed my life . . . but he stole my heart ! We were a team and I miss him dearly!!
Saturday, October 2, 2010

This garden stake will be perfect for Brextin's garden!

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I specially ordered some personalized garden stakes off of ebay right after Brextin became an angel and I am still waiting for them - it i...
1 comment:
Saturday, September 25, 2010

A Beautiful Miracle (A necklace made just for me by a past student)

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A former student of mine, Tyne has recently started to create beautiful necklaces in her spare time and I have been totally impressed with h...
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Heaven's Very Special Child

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This was sent to me after Brextin's passing . . . Heaven's Very Special Child A meeting was held, quite far from earth "It'...

Brextin's temporary headstone

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1 comment:
Wednesday, September 15, 2010

Almost done with Brextin's Memory Garden

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The beautiful statue was a gift from our wonderful daycare provider - he even has wavy hair just like our Brextin . I can't wait until ...
1 comment:
Friday, September 3, 2010

Frusterated with insurancce!

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Just this week - I got two bills in regards to our son, Brextin - who has been an angel for at least 4 months. We had BCBS over one year a...
2 comments:
Sunday, August 1, 2010

A field of sunflowers!

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I have always said that sunflowers remind me of Brextin - since they come in so many different sizes and colors. Right now I envision Brexti...
2 comments:
Sunday, July 18, 2010

The stone is in!!

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We placed Brextin's memory stone into Irvine Park this past Friday and I absoultely love it!!
2 comments:
Wednesday, July 14, 2010

Brextin's memory stone is in - it will be placed in the ground this Friday!

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We just got notified that Brextin's 8 X 16 stone has been delivered to Irvine Park - So this Friday we will be meeting as a family to wa...
1 comment:
Sunday, July 11, 2010

Thrift sale was a success!

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The thrift sale was a success - a very trying day for me - especially when I saw his walker and his rocking horse go- yet the money will be ...
Monday, July 5, 2010

Brextin's Scholarship Thrift Sale

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This week will be another sad yet promising week. We will be selling most of Brextin's items in a two day thrift sale. All proceeds wil...
2 comments:
Sunday, June 27, 2010

A public thank you was published in today's newspaper on page 2A

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Saturday, June 19, 2010

Thank you for all of the warm thoughts and prayers

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Here is a thank you card to all of those who have provided us comfort during this difficult time!
Friday, June 18, 2010

G-tubes have been sent out!

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All of Brextin's remaining G-tubes have been sent out to well deserving families - may the families find them to be of good use!
1 comment:
Monday, June 14, 2010

Missing Brextin!!

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I am extremely sad - missing our little guy! At times I still struggle with the " whys " just like I did when we were told he wou...
1 comment:
Tuesday, June 8, 2010

Supporting Jaxen!!

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We just attended a wonderful benefit for a local 4 year old boy who suffers from Sotos Syndrome. http://www.sotossyndrome.org/what.php We ...
Thursday, June 3, 2010

Vision books(these are amazing!)

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These were some of the books that Brextin received from the state since he was legally blind - they were truly amazing - I just wanted to p...
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Friday, May 28, 2010

We have extra g-tubes Bolus extensions with cath tips - do you know someone who could use them?

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When my son was feed via g-tube we used the Kimberly - clark MIC-KEY bolus extensions sets with Cath tip - secure- lok straight connector...
3 comments:
Wednesday, May 26, 2010

Last article about our son, Brextin - Leader Telegram

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Here is the last article on our son that was written by Christena T. O'Brien - printed by our local newspaper, www.leadertelegram.com ...
3 comments:
Sunday, May 23, 2010

Looking for a site to print Brexitn's blog into a book

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I plan on beginning to search for a site that will print our son's blog into a book - I am uncertain what it will look like since the vi...
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I have three wishes . . .

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I have three wishes . . . I wish everyone did the following while sending their condolences 1) write their names legibly 2) write first and ...
Thursday, May 20, 2010

Brextin's life is passed on . . .

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We have passed along all big items to about 8 to 9 local families in hopes that Brextin will live on through their children. These are som...
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Saturday, May 15, 2010

Paying it forward - through the life of my son, Brextin

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We are paying it forward with all of Brextin's items - if anyone would like to send me a message and we could arrange a time for you to...
3 comments:
Friday, May 14, 2010

A mother's day wish from Heaven (I love this!)

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I just got this from a past student of mine - I truly love it! A Mother's Day Wish From Heaven Dear Mr. Hallmark, I am writing to you fr...
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Thursday, May 13, 2010

Pay it forward

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Today we gave gifts for Brextin's birthday - First we visited the school in which he was scheduled to attend and donated his adaptive b...
1 comment:

Happy Birthday Brextin!!!

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Today we will be picking our healthy boy up at the funeral home and taking him home in an adorable urn where he will be spending his 3rd bir...
2 comments:
Wednesday, May 12, 2010

Holding on

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Our son's service yesterday was beautiful, a wonderful gal who has touched our lives forever gave a heart warming eulogy, my husband and...
1 comment:
Tuesday, May 11, 2010

One word "Unbelievable"

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Last night was our precious son's visitation and I must say I was so honored by all of the wonderful people that came out to provide pra...
4 comments:
Monday, May 10, 2010

I now understand why God had selected us to be Brextin's parents

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I thank each one of you that have sent their prayers and thoughts to our family - they say that God often selects certain parents for his s...
7 comments:
Sunday, May 9, 2010

The days just get harder and harder

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I got up this morning with a deep pain in my stomach - I knew I had to go and take the very long walk to the mailbox to see my precious son...
6 comments:
Saturday, May 8, 2010

I love you more! What a great book!

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I read Brextin the same book EVERY day of his life - I never missed a day - the book was titled, I love you more - http://www.amazon.com/Lo...

Beautiful Beautiful boy

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Beautiful Beautiful boy - thinking of having this song sung at his funeral. http://www.youtube.com/watch?v=Uldu_1-JCJE&feature=related...
1 comment:
Friday, May 7, 2010

Here are the funeral arrangements

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Visitation will take place on Monday at Fuller Speckien Hulke on Rudolph Road from 5 until 7:00. Funeral will take place on Tuesday at Our...
13 comments:

Brextin is now an angel up in heaven

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Our son was born on Mother's day almost three years ago - so he would have been turning three on the 13 th of this month - however ...
49 comments:
Thursday, May 6, 2010

Things are NOT good!

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Brextin is currently at St. Paul - having another EEG done - he had two seizures yesterday and at least 6 more today - one that lasted over...
2 comments:
Sunday, May 2, 2010

Honeyemoon is over :-(!

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Brextin is having about 2 seizures a day - we will be heading to a hospital in the cities for a second opinion this week - he will be under ...
Friday, April 30, 2010

He failed his hearing test - an ABR has been scheduled

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Brextin seems to like real high frequencies so I am a little concerned that his hearing might not be the greatest - so we went to the hospi...
Friday, April 23, 2010

Thrift sale was a huge success!

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We had a wonderful turn out for our thrift sale and have raised a nice amount to help pay for some therapy. There was even a nice lady that ...

I am concerned that the spasms have returned!

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I am concerned that the spasms have returned - we have never seen spasms with our son - the brain pattern just has been observed while on a ...
Wednesday, April 21, 2010

School - IEP - and diapers

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We had his transition meeting yesterday and I think it went pretty well - nothing is finalized yet - but I think we will try to send him 3 ...

Why does it take so LONG for doctors to reply!

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It would be two weeks this Saturday that Brextin has had a seizure - however today he has had many - I have asked our neuro at Rochester M...
Sunday, April 18, 2010

Getting ready for a block thrift sale - a sad moment for me

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As I am beginning to mark items for the sale - I can not help but hold back the tears as I am marking toys that his once older brother use t...
Tuesday, April 13, 2010

Purple toes

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We have always questioned Brextin's circulation - and our local doctor claims that it is normal among children who are non-mobile - I j...

We are going to try name brand Keppra instead of the generic

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We are going to try the name brand version of Keppra to see if it will make a difference other than the generic version - since he still co...
Sunday, April 11, 2010

They're back!!! Ugly Seizures!

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Brextin has been having about two to three seizures a day (plus throwing up after some of them) - we have increased his generic Keppra to ...
Saturday, April 10, 2010

Spread the word - end the Word!! www.r-word.org

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One of my high school students came to school with a shirt that read . . . stop the r-word and I loved it and commended her for wearing it i...

Alternative therapies??

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A topic that has been discussed on one of the groups that I belong to via Yahoo - has been on alternative therapies. I still strive each and...
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About Me

Brextin's Hope
I am a mother of two boys - one who was born in 2004 and the second son was born in 2007 in May (who is now our guardian angel) - He had infantile spasms or also known as West Syndrome, along with a smaller head than "norm" and a very contagious smile!
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