We had Winter break today so I made an appointment for Brextin to see an eye specialist in Hudson, WI. He ended up twitching all the while he was in the van. (twitching is when he tries to throw up - but he just can't - and his whole body tends to do weird movements.) The movements just wear him out - so the eye appointment was challenging - because he didn't want to wake up. I tried to stand him up a couple of times while I held onto his arms plus I tried to undress him so he would be a little cold - but it was useless. But the doctor was able to do an exam - it took much longer than intended. After placing eye drops into his eyes he believes he is far sided (he had me look through a lens to see how is currently seeing the world) (I must say things were quite blurry) - but he thinks glasses might work, but is unsure - but would like to try - he thought we would revisit the glasses idea when we came back after the Hyperbaric Oxygen therapy in July - and I myself asked why not push for glasses now if you think it might help -
He said he wasn't going to push for them now because the lenses are so expensive in children's glasses and thinks his eye prescription will need to be changed quite often and it can get expensive - yet he did mention how many kiddos improve just by trying glasses - so as I always do I have pushed for glasses - and since Brextin would not wake up - they couldn't get an accurate fit for his head and they thought he needed a smaller pair which they didn't have so they are forwarded us onto the eye department locally at Middlefort.
He did agree with the other doctors that he does have Optic Nerve Hypolashia http://www.onesmallvoicefoundation.org/whatisonh.html - he used this big circular device with black lines drawn on it - and as he turned it he was hoping that Brextins eyes would flutter back and forth and they did not - however when he shined a bright light into his eyes - he did get upset - which he was pleased to see -
We usually see an eye specialist at Rochester Mayo - but he wasn't interested in seeing Brextin back until he could tell him - what he could or could not see - however, what if that time never comes - that is why I sought out this specialist in Hudson.
After the appointment I treated our oldest son to a day at the Mall of America, my mother joined us to help out - we were able to ride on the rides, eat at the Rain Forest Cafe, and see the fish in the underwater aquarium. It is nice to try to spend quality time with Bray as well -
However, our fun was short lived - because as mentioned above - Brextin did not have a good day - he had numerous of incidents of throwing up and twitching ALL Day long at the mall - I just hate it when other people stare - however, one parent did come up and mentioned what an adorable boy. He is in fact adorable - and we love him - I just wish he would have more good days rather than bad.
Post a Comment