Brextin's Hope

Infantile Spasms - infant epilepsy - Microcephaly (Brextin became our guardian angel in May 2010)

Tuesday, July 28, 2009

Brextin standing while leaning on couch!

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Here is a video of Brextin standing against a couch - his knees are not buckling and he isn't even bouncing - you have to be near by bec...
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Tuesday, July 21, 2009

Insurance blahs!

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I am very annoyed with our new insurance company - we use to have Anthem - and our policy allowed our son to receive 30 sessions a piece of ...
Friday, July 17, 2009

We will be exploring Medek Therapy

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Myself, Brextin as well as my mom will be hitting the skies in August for at least one week to New Jersey so Brextin can receive Medek th...
Saturday, July 11, 2009

Not Giving up!

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This is a video of Brextin not giving up - he gets up in four point and then collapses and then gets right back up - way to go Brextin - ...
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Hyperbaric Oxygen Therapy photos

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Brextin in his hood. This is Dave the technician. He was wonderful! Mom and Brextin on our last day!!! Dad and Brextin - way to go da...
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Pictures of children museum and zoo in Madison

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More photos of Brextin and Eliza

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Eliza loved the feeling of the air coming out of the fan in our hotel room. (Eliza is the daughter of Rebeccca who I met off of a list ser...

Here is a list of improvements from oxygen and intentsive therapy

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Since I have been back of course everyone wants to know if we are seeing improvements - these are some of the things we are seeing: When I h...

Our Mayo appointments.

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It is nice to be back home - we had appointments at Mayo yesterday and I must say I do have some favorite doctors and some I would rather no...
Tuesday, July 7, 2009

We are heading home!!

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I am happy and sad - I will miss the wonderful gals at the Communication Innovations therapy center - they made us feel so welcomed and the...
Monday, July 6, 2009

We had another set back (he had a seizure)

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Today was going good- Andy did his first dive and then we went back to the hotel for some lunch and then went to his two hour therapy sessio...
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Andy did a dive!

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I left my camera down in the van - but will post pictures later - of course he fell asleep in record time - Brextin slept as well - which i...
Saturday, July 4, 2009

He got RELIEF!!

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I have been feeding Brextin power pudding - which is prunes, apple sauce, prune juice and wheat bran for the past couple of days - we have ...
Friday, July 3, 2009

Pictures of Wisconsin Hyperbaric Oxygen Center (this is where he is receiving his oxygen treatments)

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Communciation Innovations (Brextin's therapy center in Madison)

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Brextin is all smiles :-)

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Walking

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Working on vision

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Brextin working on standing

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Brextin working on balance and singing

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Brextin playing with a piano

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Keeping an eye on the ball

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Brextin swinging away!

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Brextin on a Dizzy Disk (it is used to teach balance)

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Last Friday in Madison and Andy is on his way.

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He had another wonderful day - I have been taking a ton of pictures and video so we can continue some of the exercises either at home, throu...
Thursday, July 2, 2009

Brextin's therapy slideshow

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http://www.flickr.com/photos/40068275@N02/show/ I have been trying to add a slideshow of Brextin's time while in Madison - and have been...

Photo of Brextin sleeping in the chamber-

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Photo was taken from outside - as the technician opened up the chamber.

A good day.

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A good day - we just got home and plan on taking him swimming - he is doing great with a schedule - I wake him up around 6:00 and then he ha...

Here are some photos that were taken last night at the hotel

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These pictures were taken last night as we were getting ready to go to bed - he is getting his tongue outside of his mouth and is beginning...

Thank you cousin Andrea and Rebecca

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I had a wonderful time last night - my cousin and I enjoyed a wonderful hamburger at the Great Dane restaurant and then we went to the West ...
Wednesday, July 1, 2009

Neck ring for babies

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I have had a ton of inquires about the neck ring - I made this video a while back (March 2009)- in regards to buying one off of ebay or buyi...
Tuesday, June 30, 2009

I have the blah's

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I am having one of those days - where I ask myself - why us? I have been trying to stay positive the whole time while I am away from family ...
Monday, June 29, 2009

Brextin splashing and having fun!

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Brextin walking in gait trainer

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This is a video of Brextin walking in a gait trainer - there was a therapist holding his hands onto the gait trainer and another one behind ...
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Video of Brextin chewing.

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This video shows Brextin chewing and getting familiar with his tongue and lips - he has begun to suck his fingers and create a clicking soun...

A wonderful weekend and Monday!

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Grandma and Brextin Brayden pushing Brextin Hives on Brextin's foot Brother's how sweet! What a wonderful weekend - it was nice ...
Friday, June 26, 2009

Things are going GREAT!

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We had another wonderful day - he is currently sleeping during his OT therapy session - I left him at the center while I ran to the hotel to...
Thursday, June 25, 2009

Another wonderful day!

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We had another wonderful day - except that he woke up at 5:20 instead of 6:00 - so his naps were a little off - but we had no seizures - whi...
Wednesday, June 24, 2009

More photos from today's sessions

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Here he is working on balance. Here he is working on pushing with his hands. Here he is working on catching himself with his hands when h...

Brextin swimming

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www.waterwaybabies.com this is the website in which we purchased the neck ring from - he has worn one in the tub since he was at least one ...

What a wonderful DAY!!

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We had two great dives no seizures and he worked very hard today at therapy. He even napped when he was suppose to. It has been a struggle t...
Tuesday, June 23, 2009

Video of him getting in 4 point.

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Brextin has been tipping over while sitting (this is because he has begun to push with his hands on the floor and rock back and forth but h...
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More seizures :-(

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Today was not a good day - he had 3 small seizures while in the chambers - we also had a follow up appointment with Dr. VanDyke and he ment...
Monday, June 22, 2009

More photos - way to go little guy!

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Going Good!

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We had two wonderful dives today - Brextin did have a mini-seizure lasting about 10 seconds during the first dive - but other than that he ...
Friday, June 19, 2009

More photos

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In a couple of the pictures you can see how exhausted he is getting from his busy schedule - but it will pay off in the days to come. He is ...

Here are some photos from therapy.

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The picture of the little girl is Eliza - this is the daughter of Rebecca who I met through the Micro list serve from yahoo.
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About Me

Brextin's Hope
I am a mother of two boys - one who was born in 2004 and the second son was born in 2007 in May (who is now our guardian angel) - He had infantile spasms or also known as West Syndrome, along with a smaller head than "norm" and a very contagious smile!
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