Brextin's Hope

I am having one of those days - where I ask myself - why us? I have been trying to stay positive the whole time while I am away from family ...

This is a video of Brextin walking in a gait trainer - there was a therapist holding his hands onto the gait trainer and another one behind ...

This video shows Brextin chewing and getting familiar with his tongue and lips - he has begun to suck his fingers and create a clicking soun...

Grandma and Brextin Brayden pushing Brextin Hives on Brextin's foot Brother's how sweet! What a wonderful weekend - it was nice ...

We had another wonderful day - he is currently sleeping during his OT therapy session - I left him at the center while I ran to the hotel to...

We had another wonderful day - except that he woke up at 5:20 instead of 6:00 - so his naps were a little off - but we had no seizures - whi...

Here he is working on balance. Here he is working on pushing with his hands. Here he is working on catching himself with his hands when h...

www.waterwaybabies.com this is the website in which we purchased the neck ring from - he has worn one in the tub since he was at least one ...

We had two great dives no seizures and he worked very hard today at therapy. He even napped when he was suppose to. It has been a struggle t...

Brextin has been tipping over while sitting (this is because he has begun to push with his hands on the floor and rock back and forth but h...

Today was not a good day - he had 3 small seizures while in the chambers - we also had a follow up appointment with Dr. VanDyke and he ment...

We had two wonderful dives today - Brextin did have a mini-seizure lasting about 10 seconds during the first dive - but other than that he ...

In a couple of the pictures you can see how exhausted he is getting from his busy schedule - but it will pay off in the days to come. He is ...

The picture of the little girl is Eliza - this is the daughter of Rebecca who I met through the Micro list serve from yahoo.

We had a terrible night last night - there was a tornado that was spotted about 6 miles from where we were staying - so we were in the basem...

Last night I began to pack up - tonight I will be filling up the van - so after therapy is done tomorrow - we will be heading home to share ...

I left this morning at 7:00 and got to the center at 7:35 - there was absolutely no slowness on the highway - it was a great commute! Brexti...

They are building a new building right next to the Hyperbaric Oxygen Therapy center and the big bulldozers must have hit a power line - tal...

We left at 6:45 this morning and arrived early this morning - remind you the reason why I leave early is to feed him at the center - but the...

Usually when we place Brextin in the tub - he just lays there - but tonight he was kicking and splashing in the tub - not so much with his a...

I have not told my cousin yet - but will be moving to a hotel near the therapy center on Sunday - The reason is that this morning was a cha...

It was an interesting night - Brextin was having troubles sleeping and so I pulled him into my bed to sleep with me- but all he did was kic...

Yesterday - we headed into town around 1:30 to attend the open house activities at the WI HBO center but it was a little awkward - the cente...

Brextin decided to rise and shine at 5:30 this morning - but I stayed in bed and listened to him babble until 6:30. Last night we ended up ...

Brextin's nose was getting filled up and I wanted to make sure he was able to breath well today - so he used his Mr. Bubbles nublizer t...

Our days will now become longer - since our guy is so little - he really needs his naps - and he has decided to take them during his therapy...

Today was a busy day - Brextin got up at 5:30 a.m. and then we left the house by 7:00 to make our first HBO dive at 8:30. There is a lot of...

Tomorrow is the day when we hit the road!! Wish us luck!! I am very anxious! Our first therapy session will be this Wednesday in the morning...

Today is Sunday - and I have packed Brextin's going away bag along with mine - I have no idea how I will be able to fit everything into...

Only ten more days until we hit the road for therapy - I am so excited!! We have been seeing more seizures - he had three yesterday and one ...

Only 16 more days remain until we seek Hyperbaric Oxygen therapy along with therasuit training - Brextin is fighting a terrible cold and ...

Brextin turns 2 today!! The school year is coming to an end - so this evening was the class of 2009 awards ceremony - and each and every th...

I just got a second notice for a $10,000 bill from our insurance company in regards to his Oct 31st helicopter ride - - they claimed they do...

You may or may not know - but Brextin was actually born on Mother's Day - his birthday this year will be on Wednesday - the 13t h - he...

I am so excited - we are getting closer to our trip to Madison - only 5 more weeks until we hit the road -Please keep praying for success - ...

On Thursday night - I was jumping Brextin in his Merry Muscles http://www.babyloveproducts.com/merrymuscles.html - when all of a sudden he...

This was the picture that was in the Leader Telegram for his benefit. There will be a HUGE thank you in the Sunday issue of the Leader Teleg...

We are still going strong with no vomiting issues - it has been truly amazing - I think it has been over 8 weeks!! This morning he threw up ...

Thank you to all who came out to our son's benefit - we had over 600 people attend - it was truly amazing - we had over 175 businesses t...

Today is the day of our son's benefit - It is at the High School in Elk Mound - signs will help you lead you in the right direction. Foo...

Things are going well for Brextin's benefit - I am in the process of purchasing a lap top computer so I am able to take it with me - wh...

Just this week - we have noticed that when we hold onto his waist or his hands and have him walk towards us - he actually is beginning to li...

Tonight we have a meeting with our committee members - to help gather and to take care of loose ends for Brextin's benefit - We even hav...

Last night we were invited to attend a grand opening of a Jimmy John's here locally owned by a handful of our friends and they so gracio...

We had a wonderful weekend - Brextin did have one seizure and did throw up once - but other than that - he was a very happy and energentic. ...

Brextin is doing better - we stopped having him wear his glasses and we haven't seen any seizures. Plus we have two great stories to sh...

We have had a terrible couple of days - for starters - he has been having more seizures - and our daycare provider even said - he stopped b...